The Immunology, Asthma, and Allergy Research Center of Tehran University of Medical Sciences has published a Persian guide on Hereditary Angioedema
For the first time, and with the aim of enhancing both public and professional health literacy, the center has translated, localized, and published a comprehensive guide for patients with Hereditary Angioedema in Persian. The guide is released in the form of a book titled “Understanding Hereditary Angioedema.”
The Immunology, Asthma, and Allergy Research Center at Tehran University of Medical Sciences, committed to raising public health awareness, has translated and published an educational guide titled "Understanding Hereditary Angioedema" for Iranian patients and their families.
Hereditary Angioedema (HAE) is a rare genetic disorder caused by C1-inhibitor deficiency, leading to potentially life-threatening swelling episodes. The guide aims to help patients and families understand the disease, distinguish it from allergic angioedema, and manage it effectively.
Adapted from a U.S. HAE Association resource at the request of the international HAE Patient Association, the guide was translated by Dr. Sara Bahreini and edited by Dr. Zahra Pourpak and Dr. Mohammadreza Fazlollahi. It is now freely available online via the Center’s website.
This initiative, part of the Center’s broader efforts as a member of the ACARE global network, aims to empower patients, support families, and improve HAE care in Iran.
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